I’m so thankful that tomorrow I will be meeting with a fertility specialist who works closely with cancer patients. By some miracle this great doctor called me and is going to see me for free to discuss my options. I just hope everything works out and I’m not getting my hopes up. Truly happy right now.
F radiation! It’s making my forehead breakout and that’s not okay!!
It’s so funny to call around to various doctor’s offices and ask if they take Medi-CAL. They seriously answer with such disgust when they don’t. Today I was able to schedule an Eye Exam since the medicine is really taking its toll on my eye sight. I also called around for a Reproductive Endocrinologist, which is a fertility specialist. In no way do they accept medi-cal but I got this one lady who just happened to know a doctor that is heavily involved in fertility and cancer patients so I gave her all my info. That would be absolutely amazing if she called me back with some good news. You just have to plead your case and make doctors feel bad for you to get what you want. I think I have mastered the trade.
My new drug costs $5,500 for 150 pills. I have to take 5 a day. Thank you BCCTP. Glad I don’t have to pay for this.
Had a beyond amazing weekend in Big Bear. Feeling completely refreshed and ready for week 2 of radiation.
So thankful to have a wonderful boyfriend who I can talk to about anything and everything. Today he helped encourage me to go to the gym in the morning and have a nice, easy workout. I ended up feeling extremely motivated and got a GREAT workout in. It has given me energy all morning and i’m so stoked. I also read some encouraging words from some women on a breast cancer mets forum and it was very comforting. I’m definitely in a good place today. Ready for Day 4 of radiation today, Day 5 tomorrow, and then a nice weekend up in Big Bear.
So I’ve slowly been coming to terms with the fact that I have breast cancer brain mets and there’s really nothing I can do to change it so I might as well just fight it. I’m not sure why my onc was not scanning my brain all along but it’s pretty useless to focus on that now. I started whole brain radiation, which has a huge success rate at zapping the cancer. I have mixed opinions between my medical and radiology oncologist. One is saying that I should switch from tamoxifen/herceptin (which is still working at keeping my regular breast cancer at bay) to another type of therapy that can get through to the brain. The other is saying that she will take care of the brain, and keep doing what’s working for the rest of my body. Eventually they will have to come to an agreement. I’m basically just trying to get through these 4 weeks of radiation everyday and hoping that someone knows the next steps. It’s difficult not knowing what will happen but I guess that’s how it goes. So far I’m tolerating radiation well- it’s not bad at all. I feel tired and anxious from the anti-seizure meds and steroids but having to take naps is the least of my worries. I just hope this radiation gets the cancer and it NEVER comes back.. Don’t know what else to think or say so i’ll just say thanks for your thoughts and messages. It’s GO time, lets do the damn thing. again.
Day 1 of my new job
Started my new job yesterday at Geico. It was the first out of three orientation days and I feel like I learned so much about the company. There’s a lot of interesting facts and I really feel like it’s a great company to work for. I’m really looking forward to being a part of a good team, DRAMA-FREE. The pay is amazing and the benefits are too. If I didn’t already have my awesome, awesome medical insurance then I would totally jump on the Kaiser plan that they offer. I’m definitely excited for work today to learn more about our other benefits and hopefully start saving for the future. I feel like an adult.. scary.
YAY for the BCCTP!
I had a stress-filled weekend because Medi-Cal decided to send me a letter saying that I no longer qualified for no-cost coverage and my new share-of-cost was $621/month. Yikes. Nothing has even changed and I haven’t started working yet so this was completely out of the blue. I stressed about it all weekend and left a few voicemails to several different people. Luckily, bright and early monday morning I rec’d a voicemail from a rep at the Breast and Cervical Cancer Treatment Program (BCCTP). I called her back and she gave me the most wonderful news.
- I have Full Coverage Medi-Cal covering all my medical needs (including non-cancer related).
- I have coverage until I am no longer in need of treatment or until age 65.
- They base the coverage on the disease and NOT on income. So when I start my job I’ll still be covered.
- I’ll never have a share of cost- ever!
So excited & thankful for this cancer program. I am seriously on cloud 9!
The other Medi-Cal rep finally called me back and argued with me about the other coverage I had, that was based on my disability income. I told her TAKE ME OFF that program, I’m already on the BCCTP! She said, “but that’s only for cancer treatment” and I said NO IT’S NOT- I already confirmed this with the program itself. She said, oh I didn’t know that… YEAH of course you didn’t. Why am I always so much more informed on programs than people who work there??? UGH.
But I’m happy everything worked out and I’m ready to start working!